As we wait to see whether Harry Reid can deliver on his promise to get a public option into healthcare reform legislation, I’m wondering why more Americans aren’t clamoring for the exact same health security I enjoy.
I’m not 65, and I’m not struggling beneath the poverty line. But I do qualify for a little-known federal insurance program that ensures I get the treatment I need. This program has saved the lives of more than a million Americans—including my father’s and my own.
A year ago, I learned I’d inherited the same cystic kidney disease that nearly killed my father in 1972. Back then, Wayne Nix was a young schoolteacher with a wife and two little girls to support, and after his diagnosis, he had two choices facing him: death or financial ruin.
Dialysis and transplantation were established, successful treatments, but they were expensive, and all of the private insurance companies back then refused to cover patients like my dad.
Luckily for my family, activists successfully lobbied Congress to create the Medicare End-Stage Renal Disease (ESRD) Program.
Republicans and Democrats voted in support of this legislation, and President Richard Nixon signed it into law in 1973. My dad was among the first beneficiaries of the program, which ensured that kidney patients would get access to life-saving dialysis and transplant treatments, regardless of age or income. The program covered my dad’s dialysis costs for seventeen years, and his transplant in 1991.
Today, as I watch the endless cable news loops highlighting the disheartening acrimony and willful misinformation pervading our healthcare debate, I’m amazed that renal disease was ever added to the Medicare program. That it enjoyed such strong bipartisan support in the seventies seems impossible now. But, back then, Congress believed covering kidney patients was just a stop-gap to tide them over until universal healthcare covered everyone. Even Richard Nixon was on board with the idea of a national health insurance plan.
Unfortunately, as we all know, that never happened.
I had my own transplant in May of this year. Because I also have private insurance, Medicare is my secondary payer. Through legislative changes made to Medicare ESRD over the decades, private insurance was forced to cover more Americans with kidney disease than they ever did when left to only market forces or their own good intentions. As President Obama says, this public option kept private insurance honest.
Between my two policies, most of my bills arrive saying "paid in full." I also know that if my husband or I lose our jobs, or my private insurance drops me, or I hit some arbitrary cap, Medicare’s got my back.
If a public health insurance option works for one disease, why shouldn’t all Americans enjoy the same level of health security? I must admit, I feel guilty to have access to this government program, when my friends with, say, cancer or MS, do not.
My sense is that if more Americans knew about this successful and existing public insurance option for one disease, they’d be telling their representatives in Congress to make sure the public option becomes a realistic option for all Americans.
Jennifer Nix is a writer and activist, and publisher of Guernica Magazine.





31 Comments
Spotlight
Support this site!
Subscribe to the newsletter
Advertise on Firedoglake
Send
us your tips
Make us your homepage
About The Seminal
Advanced search
Thanks for getting the word out. This should be part of the discussion. I’ll let Keith Olberman know, he’s having an hour long special comment on Wednesday devoted to healthcare. Sounds like there may be a call for ACTION!
Thanks for the piece, Jennifer, and your story is the perfect example.
Citizen Loo Hoo:
Olberman may be callin for “action” and I certainly can’t argue with that but I’m afraid it’s too little too late. Now our bright, young President is facing exactly the same conditions that JFK faced in 1962 except that the country is bankrupt and doesn’t have an elected Democratic majority that remembers the Depression and America before the corporate military took over. Unless Obama stands up and demands a public option and fires Gen. McChrystal AND Gen. Petraeus this week, our long national nightmare will get a whole lot worse.
Thanks, and glad your father was able to live and hopeful for you. Some, in my experience, have had to bend the system and leave work they would have preferred, if employee benefits had paid for their expenses due to medical problems, so that they could qualify for the benefits they had to have for themselves and/or their families.
We will hope/pray for the best. There was discussion earlier about why Pres. Obama chose McChry. I suspect the choice was at the urging of Petr…but who knows. I am sick of the military (no disrespect to the troops); get the draft if way more troops are needed. Talk about = opportunity. I do think it bodes well that the Pres. has chosen to spend some time with his team…get analysis and support for the best plan. We can hope.
When you retire with medicare you’ll need to have supplementary private insurance, along with the medicare insurance which is also managed by private insurance companies.
I think it’s been said before, that the biomedical insurance complex depends on the government for a number of things, one of them being programs that cover high risk patients such as the elderly who face end-of-life complications and patients with chronic illnesses. What they are against is the usurpation of the huge market that involve people who are not likely to get seriously ill anytime soon. They covet that group and are fighting to keep it at great cost to their own shareholders, I imagine. I wonder if they got any of the stimulus monies that were doled out in the past few months.
Jane Harman gets health care reform she tells Morning Joe…her 27-yr-old’s insurance was cancelled after having surgery.
yes. this is public option as refuge for those in need – not competition for private insurance corps.
Citizen RevBev:
Bless your heart but we are WAAAAY beyond solvin’ this mess with a draft and more troops…a political solution involves breakin’ the corporate oligarchy by nationalizin healthcare, firing McChrystal and Petraeus and beginnin’ investigations into 9/11 right now. Anythin’ less than what I have here described will be as productive a mammaries on a boar hog.
And I am wonderin’ about how long the rest of the world is gunna put up with us before they quaranteen the old USofA.
Indeed.
By the way, did you see Masaccio’s piece yesterday on the unhealthily large role played by “goodwill” as an alleged asset on the balance sheets of certain very large health insurance companies? As he says, maybe the reason they are so anxious to avoid the public option is that their balance sheets really would be seriously weakened if it passes.
Jennifer – Welcome back to Firedoglake
wow Jennifer, been involved in the various healthcare actions here at FDL and I’d never made this connection – even though my sister has benefited from the ESRD Program
she has received “experimental” treatments/meds on more than one occasion
neither of us paid a dime for the tissue matching we proactively set up in the event a transplant was needed – something we’ve long known would be paid for
and, her problems stem from long ago domestic violence, believe me, we’ve never heard the words “pre existing condition”
I can’t wait to talk to her about this. sorry you have had to deal with this but relieved you aren’t struggling as so many american families are.
fabulous point beautifully made in this post
thanks
fyi – just now caught the tail end of Rep Weiner putting the beat down to Betsy Pig Nose (McCaughey ?) on Rattigan’s show – Dylan going to commercial and pointing out to his audience that she failed to answer any of the questions put to her – doesn’t he know who she is ?/s
This is a wonderful post. Thank you.
Health care is a human right.
Senators Rockefeller, Schumer, Stabenow and Widen of the Senate Finance Committee Sub-committee on Health, did a great job of pointing out that the Medical Industrial Complex’s contribution to Health Care Reform, according to the Congressional Budget Office (CBO) is $20 BILLION and in return they will get $500 BILLION in TAX-PAYER FUNDED SUBSIDIES. Democratic Senators baucus, conrad, carper, lincoln and nelson voted with the republicans to kill the public option 09-29-09.
Criminally corrupt politicians are the reason the U.S. is ranked near the bottom of every catagory when ranked next to other modern, industrialized nations. Time for publically funded elections.
lieberman $12.6M, mcconnell $7.8M, baucus $7.7M, cornyn $6.7M,
kyl $5.6M, grassley $5.4M, ensign $5.2M, conrad $5.1M, cantor $4.9M,
nelson $4.9M, burr $4.8M, boehner $4.4M, hatch $4.4M, lincoln $4.1M,
vitter $3.9M, carper $3.6M were paid by the Medical Industrial Complex to kill Health Care Reform. (Source: OpenSecrets.org, Aug. 09)
Follow the Money: Link
Call Congress and demand, Single-Payer Health Care for All!
(Toll Free # House and Senate)
1-866-338-1015 _____ 1-866-220-0044
1-800-473-6711 _____ 1-866-311-3405
Sign Single-Payer Petitions: Link Link
Don’t let the Medical Industrial Complex steal your Health Care from you and your family by donating huge sums of money to Crooked Politicians in order to maintain the Status Quo. Keep up the good fight.
SEMPER FI!
Discrimination under the color of law by a state based corporations, which may be tax exempt and considered a public charity for tax law purposes, or for profit with a tax liability? After 27 years of paying premiums to a insurer her policy is canceled? Sounds like a lack of “equal protection” and lack of “due process under the law” while claiming the color of law to justify the discrimination, for corporate profit!
A Life Tax? A corporate wet dream? Corporate Servitude enabled under the color of law, predicated on discrimination and the luck of the genetic draw? Kind of like being born a slave in a slave state, or black in a state that still practices segregation, under the color of law! This is absurd…protect the corporations/slave owners/segregationists while Americans die and suffer! Dumb! Dumb! Dumb!
Norske,
Do you write books? If not you should!
“Don’t let the Medical Industrial Complex steal your Health Care from you and your family by donating huge sums of money to Crooked Politicians in order to maintain the Status Quo. Keep up the good fight.”
Yes Sir! :)
it might, if there was anything like a robust po on the table (maybe likehacker’s original proposal?). unfortunately that was apparently never on the table any more than single payer was. here’s what masaccio actually wrote:
as this post demonstrates, there is a human rights benefit to even a weak po that will also benefit private insurance corp.s by taking the high cost customers off their hands. it’s the refuge po, not the competitive po.
“The good news is that a mandate for purchase of insurance policies from these behemoths is going to solve any possible problem.”
De Facto “Corporate Servitude,” as feared by Jefferson to “corporations” who use the color of law to defraud the American people now aligned to further eviscerate the governed? Madison and Jefferson wanted restrictions on monopolies and corporations for all the reasons which have become self evident and manifest in so many deleterious ways to the republic’s detriment today, as forewarned. Instead of reading and heading the wisdom’s of our founders, we ignore them! I guess watching “Dancing with the Stars,” to get some relief from all this malarkey, is important as well as a “clearer” reading of America’s history for many Americans?
Dumb! Dumb! Dumb!
yes. the stupid. it burns.
today’s Democratic Party is waaaay to the right of Richard Nixon, whom Noam Chomsky calls “the last Liberal President.” This slide was enabled every inch of the way by appeals to pragmatism, of course.
You’re absolutely right. Living donors’ surgery expenses, and tissue matching and other tests are covered. Good luck to your sister. Sounds like she’s up on all the issues regarding her health challenge. Thanks for your comment.
When it happens to them they get it. When it happens to other people and their children, they don’t.
BUSTED! Government Healthcare Advocate Admits Public Option is Trojan Horse!
http://02e56fa.netsolhost.com/…..le-1-advoc
We still have a ways to go until ALL kidney patients are eligible for transplants. I’ve encountered too many people who aren’t on the transplant list because they can’t afford the immunosuppressant drugs that are required.
Right now, Medicare only covers the drugs for 3 years post-transplant. After that, the patient is on their own. How many transplanted organs – a priceless gift – are lost because the patient can’t pay the $2500 +/- per month for their prescriptions?
Please, call your Representatives and Senators and ask them to co-sponsor and/or support S-565 and H.R. 1458. These bills extend Medicare coverage for immunosuppressant drugs for the life of the transplanted organ, instead of the current 3-year period.
I’m a home hemo-dialysis patient who is currently on the list for a kidney transplant. I have private insurance (for now), so this extension doesn’t truly impact my life, but it breaks my heart when I think of the other patients at my old dialysis center who are stuck on dialysis because they don’t have coverage.
Absolutely. I intend to write about that next. YOu should read the longer article in Salon that I wrote, which I link to in the piece above, as I get into the fact that Medicare doesn’t pay for all ESRD patients, particularly if they have private insurance. But it’s a secondary payer in most of those cases, and a backup should they lose insurance.
I agree it’s ridiculous to keep people on dialysis rather than transplanting. It’s cheaper for people to have transplants than to keep them on dialysis. Drug coverage should be extended to cover the life of the organ, because those drugs are cheaper than dialysis. And the quality of life for the patient is so much better.
Problem is two-fold though, there aren’t enough organs to transplant everyone who needs it, in addition to the current legislation being problemmatic on this front.
I think that we should have a Constitutional amendment that every authorization for war must contain a tax increase to cover the cost. Congress must approve the tax increase with the war resolution (or appropriation if it’s another one of those wars that isn’t considered a real war so there was no declaration or resolution). Perhaps then politicians might stop and think before enmeshing us in these messes. Maybe we should require a reinstatement of the draft as another condition of going off to fight, too. We really need to connect the costs to the war or we’ll be off on patriotic suicide missions until we end up as messed up as the Soviet Union did.
I read your article – very nice. I get so flustered and tongue-tied when I’m trying to explain to people how the Medicare ESRD benefits work, plus their obtuseness makes me really angry at times. I actually had someone tell me Congress should rescind the act that gives us those benefits, ’cause our government shouldn’t pay for anyone’s care.
Home dialysis has been a life-saver for me. I was in-center for 1-1/2 years and during that time, I really wondered if it was worth the bother. I felt so sick all the time, and had to bow to the center’s schedule. It made working really hard for me. Thank heaven I have a VERY understanding boss!
There has been so much I’ve seen during the 2 years I’ve been sick that is just wrong. However, most patients don’t or won’t complain. The center I was going to was very happy to see me leave, because I wouldn’t let them get away with re-using dialysizers on me.
Good for you, for not letting them reuse dialyzers(!) and for doing home dialysis. You’ll be much better off. Let’s keep in touch. You can find me on Facebook.com/jennifer.nix. Or on Twitter @jen-nix.
Nothing the Congress does is for the public. So even the public option is a joke. Words, stories, pain, suffering, and yes even deaths mean nothing to Congress. When all of You people wake up to the fact that the Congress, which is our Government, doesn’t work for us, You, or the Country, only then will the answer to our problems become clear. Replace all in the Congress and start over. Even the medical care the Government does dish out now, won’t be there in a few years, because if they can’t pay for Healthcare now, they won’t be able to afford to pay for Medicare, Medicade, and Social Security when they all o broke. They won’t be able to tax a Country of unemployed people enough to pay for it.